1. Analysis of the Debated Bill on Rare Autoimmune Rheumatic Diseases

Structure and Main Content:

• The debate was led primarily by Jim Shannon, who articulated the importance of focusing on Rare Autoimmune Rheumatic Diseases (RAIRD).
• Key focus areas included awareness among healthcare professionals, improved access to medications, early diagnosis, and funding for research.
• Shannon mentioned the support from RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) and referenced specific diseases such as Behçet's disease, lupus, myositis, scleroderma, Sjögren’s syndrome, and vasculitis.

Policy Terms and Technical Terminology:

• NHS 10-year Plan, UK Rare Diseases Framework, Genomics England, and Specialised Networks.
• Quality Standards, Diagnostic Technology, Equitable Care, Research and Development.

Named Entities and Organizations:

• Jim Shannon (DUP, Strangford): Lead speaker, full advocate for rare diseases.
• Gregory Campbell (DUP, East Londonderry): Contributor, emphasized awareness.
• Dr. Rupa Huq (Labour, Ealing Central and Acton): Chaired the debate.
• RAIRDA: Collaborator, helping drive the rare disease agenda.

Statistics and Numerical Data:

• Over 170,000 individuals affected in the UK.
• £26.3 billion NHS funding referenced by Shannon.
• Diagnostics average took 2.5 years, with 30% of patients waiting five years.
• 70,000 to 100,000 pounds estimated costs for ENRAD, saving 150,000 to 200,000 pounds annually.

Related Parliamentary Business:

• NHS 10-year plan discussed as a political instrument for systematic healthcare improvement.
• Actions suggested hint at collaboration with NICE for quality standards in rare diseases.

Key Dates and Timeframes:

• 2024: Upcoming analysis release and action plan.
• 2026: End of the current rare disease framework.

Political and Policy Stances:

• Cross-party consensus on need for improved diagnosis and funding.
• Emphasis on ensuring that rare conditions are a priority in national healthcare strategies.

Departments and Governmental Bodies:

• NHS England, Department of Health and Social Care, National Institute of Health and Care Research (NIHR).
• Mentions of the role played by Genomics England to foster cooperation in research.